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Experiences

  Anna & Pete (Australia)
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  Sam McCuish (UK)
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Sam McCuish (UK)

Chapter One: Diagnosis

I began my periods when I was 16 and, from day one, they were painful and irregular. I thought this was normal and lived with it. By the time I had reached 18, things had got much worse, the pain just before and during the first four days of my period was debilitating. I also had no idea when my period was due, and this was making life difficult for me. As young as I was at this time, I was very concerned about my prospects of having a child, something that was more important to me than anything else I could ever imagine. As a biology undergraduate, I knew all too well that it was unlikely anyone could conceive with the kind of menstrual cycle I had. It was either too frequent or absent.

I consulted with my then G.P, who was very caring and understanding and who immediately referred me to see a specialist gynaecologist. My experience with the gynaecologist was not a particularly positive one. On physical examination and clinical presentation I was diagnosed with mild Endometriosis and treated medically in the first instance. Things did not get better and laser surgery was my next option. As things progressed, I had five years of laser treatment (four in total) and hormone treatment, to control what was then discovered to be moderate Endometriosis and Poly Cystic Ovaries. As an 18 year old it is extremely difficult to communicate verbally your concerns about fertility and be taken seriously by the medical profession. However, as I was well aware that the condition is related, as yet in an unexplained fashion, to infertility, I was prepared for what the future may hold and, although this has caused me great emotional stress at times, it also allowed me to be in control of what was to happen over the coming years.

A new consultant, whom I was referred to, as I was unhappy with my current treatment, completed my last laser laparoscopy. The words “when you decide you want to start a family you will have to come back and discuss this with us” were finally uttered. By now I knew I would need fertility treatment, so it was no great shock to me and, in fact, it was an enormous relief that it was no longer something which I was never completely sure about. I now felt that I could move on.





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